Survivorship research: LIVESTRONG studies
In addition to clinical and supportive services, CCSP and the UNC Survivorship Program participate in several research initiatives, including the LIVESTRONG Survivorship Center of Excellence Network (LSSCOEN). The network consists of the following seven NCI-designated Comprehensive Cancer Centers: UNC- Chapel Hill, Lineberger Comprehensive Cancer Center. Abramson Cancer Center, University of Pennsylvania, Dana-Farber Cancer Institute, Fred Hutchinson Cancer Research Center, Memorial Sloan-Kettering Cancer Center Survivorship Program, UCLA Jonsson Comprehensive Cancer Center, and University of Colorado Cancer Center. Current LIVESTRONG-sponsored studies include:
-- Evaluating treatment summaries and survivorship care plans within the network:
The study's Phase I goals were to facilitate survivorship care planning intervention refinement and outcome metric development within the LSSCOEN with respect to the Institute of Medicine's (IOM) recommended standards. Phase II goals were to describe feasibility, provider and system processes, and patient responses to the delivery of treatment summaries and survivorship care plans across the network.
-- Use of patient reported outcomes in facilitating survivorship care and determining risk of adverse outcomes in survivors:
The goal of this study is to standardize patient reported outcomes across all seven Centers of Excellence and evaluate the extent to which patient reported outcomes facilitate survivorship care. Phase I goals are to determine feasibility, usability and clinician and survivor satisfaction with an internet based, comprehensive PRO assessment. In Phase II, the outcome effects of providing the PRO summary to providers prior to clinic visit will be compared with usual care on survivor outcomes of emotional distress, survivorship knowledge, symptoms and health behaviors.
-- Survivorship study for young adults with cancer:
The goal of this study is to develop a LIVESTRONG young adult (YA) cohort of survivors between the ages of 18 and 39 years that will form the basis for investigations that will 1) test the impact of providing the essential elements of survivorship care, 2) provide evidence that will support long term follow-up recommendations for this population, 3) determine effective methods of communication with the YA survivor population and 4) serve as a platform for interventions that will improve outcomes and quality of life in YA survivors.
For more information about the LIVESTRONG Survivorship research contact Elizabeth Sherwood, RN, MS, ANP at 919-843-5069 or email@example.com.